Built by citizens. For citizens.

Not With My NHS Data is an independent, non-commercial project run by members of the UK public who are concerned about the way identifiable patient records are being shared with private contractors through the NHS England Federated Data Platform (FDP) and the National Data Integration Tool (NDIT).

Why this exists

The standard National Data Opt-Out covers research and planning uses of NHS data. NHS England classifies the FDP/NDIT as direct care, so the existing opt-out does not apply. There is currently no specific way for an individual patient to opt out of the FDP. This site exists to help people exercise the rights they do have — Article 21 UK GDPR, the right to complain to the ICO, and the right to be heard by their MP.

What we are not

• Not affiliated with the NHS, NHS England, or DHSC.
• Not affiliated with any political party.
• Not affiliated with Palantir or any of its competitors.
• Not lawyers. Nothing on this site is legal advice.
• Not journalists. We summarise and link to their work.

What we do with your details

Your name, address and postcode are used in your browser to draft the letters and look up your MP via the public UK Parliament Members API. We do not store, log, share or sell any of those details. The only thing saved to our database is an anonymous row marking that a letter was generated for a given constituency, so we can show a public counter.

Letters are yours

The letters are templates. You are the sender. You decide what to edit, what to send, and to whom. We do not contact anyone on your behalf.

Allies

We point readers to the work of medConfidential, Foxglove, and the Open Rights Group. They have been doing the serious legal and policy work on this for years. If you can support them, please do.